MARK JACKSON YOUR BLOGGER IN THE PRESS!!

Lawrence Keogh with Mark Jackson on dialysis

Nadia Sam-Daliri

East London Advertiser
Saturday, 20 November, 2010
7:00 AM

TELLY chef Lawrence Keogh met with patients suffering from kidney disease to hand out his inventive new recipe book.


The Saturday Kitchen cook - who had a kidney transplant ten years ago – has designed special dishes for those on dialysis whose diets are massively restricted as a result of the disease.

He spent a few hours chatting to patients at Whitechapel’s Royal London hospital today (Friday) to hand out his book and find out what other meals they would like included.

Mr Keogh decided to take action after experiencing first hand how difficult it can be to enjoy food while abiding by the strict diet dialysis requires.

He said: “I was on dialysis for two years and it was hard. I started just doing boiled rice and boiled chicken and it got very boring.

“People are now sharing tips for recipes - it’s brilliant. It’s about cheating with ingredients while still being able to enjoy your favourite dishes.”
Mark Jackson, 51, has been on dialysis for six years.
He was on holiday in Greece when his kidneys failed and has been coming to The Royal London for six hour sessions three times a week since then.

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Behind the Headlines:Warning over stem cell therapy

The experimental use of stem cells for kidney repair has been linked to complications in a patient with kidney disease, the BBC has reported. It said that stem cell injections were followed by tissue damage in the patient, who later died from an infection.

The story is based on a case report on a 46-year-old woman with end-stage kidney disease who underwent stem cell therapy in a private clinic in Thailand. The woman’s condition did not improve after stem cells were injected into the regions of both of her kidneys, and so three months later she began dialysis. She was later found to have abnormal growths of tissue in and around her kidneys that the authors of the case report suspect were caused by the therapy. The patient later underwent removal of her left kidney but gradually deteriorated and died.

More from NHS Choiceshttp://www.nhs.uk/news/2010/06june/pages/stem-cell-therapy-unkown-complications.aspx

Renal Tsar: Home Dialysis Costs

Q & A: Home dialysis start-up costs


Q: Dear Donal, the perennial question relating to the provision of home haemodialysis is; “what further resources do we have at our disposal to facilitate the choice of the patient?”

About a quarter of the patients that we have in training for home haemodialysis at present do not have a suitable room for conversion and we therefore have to look at how we can provided accommodation through the provision of a porta cabin in their garden at a cost of around £12,000 per installation.

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Robot insects to remove organs via patients' mouths

Robotic cockroaches which crawl into patients' bodies and remove diseased organs by dragging them back out through the mouth are being developed by one of Britain's top doctors.


Keyhole surgery pioneer Lord Darzi is developing the "bug-bots", which are set to revolutionise scar-free surgery.

In an interview with the Standard, he said doctors will be able to cut out diseased organs and tumours using lasers in the robots' mouths. Recovery time is speeded up dramatically as doctors can withdraw the organs via the mouth.

The former Labour health minister, who is chairman of surgery at Imperial College London, said: "The benefits are very obvious. Less pain, which means earlier mobility and quicker return to work."

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All Races Miss Out on Kidney Care in Black Communities

06/18/2010


TORONTO—Regardless of race, fewer people see a kidney specialist before starting dialysis if they live in predominantly black communities, according to a study appearing online June 17 in the Journal of the American Society Nephrology (JASN).

The results highlight the importance of understanding why patients in predominantly black areas are less likely to receive kidney-related care while their kidney function is clearly declining.
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More information from Renal Business Today

Truly Tasty: Over 100 Special Recipes

Truly Tasty is a unique cookery book in that all the recipes have been created by Ireland s top chefs for adults living with kidney disease in Ireland. The book is the brainchild of Valerie Twomey, herself a kidney transplant recipient, who has spent over a year compiling it. Every recipe has been expertly analysed by dietitians from the Irish Nutrition & Dietetic Institute, ensuring that each one can be easily incorporated into the renal diet. There are over 100 recipes in the book from 30 top chefs who have also been interviewed in the book by journalist Brian Moore.

Truly Tasty is perfect for entertaining or for planning that special family meal for adults living with chronic kidney disease (CKD) and those on dialysis, who can now sit down with their family and friends and savour a Truly Tasty meal that is suitable for all to enjoy! More information from Amazon

East End cabbie gives free rides to organ donors

AN East End cabbie has been giving free lifts to people who sign up to the NHS's Organ Donor register.




Ted Goodchild, of Grove Road, Bethnal Green has been driving around town in an NHS Blood and Transplant branded cab and for two days last week waived the fares for Londoners who signed up to the register while in his taxi.

More from the East London Advertiser 

Kidney donor to a friend urges black community to donate

From the Voice Online

A MAN who donated a kidney to a friend is urging the black community to become organ donors and give blood.


Bristol-based IT consultant Wendell Raphael donated his kidney because he wanted to help his goddaughter’s mother, Angelique Daley.

She suffered kidney problems linked to Lupus, a condition that causes the body to attack its own cells and tissues. For years, Daley was forced to be on dialysis.

“When I found out I had a bit that could make a massive difference, I didn't say no,” said Trinidadian-born Raphael.

Click title for more  from this article

Related articles: TV star backs bid to boost black organ donors

Windpipe transplant using stem cell, success in UK child

A 10-year-old British boy has become the first child to undergo a windpipe transplant with an organ crafted from his own stem cells.


It is hoped that using the boy's own tissue in the nine-hour operation at Great Ormond Street Hospital will cut the risk of rejection.

Click on title for the full article

Radical steps to boost London's organ donations

BBC Inside Out's Mark Jordan finds out why the capital's hospitals are taking radical steps to boost organ donations.

Barely a quarter of all Londoners have signed up to be organ donors.

Many refuse to become donors because they do not want to think about death or have fears about what it involves.

One thousand people a year die because of a lack of organ donations.

Click title for more info and video.

Organ Donation Ad (New Zealand)

An award winning tv commercial to raise organ donation awareness in New Zealand. Directed by Cameron Duncan and sponsored by Peter Jackson (LOTR)

Celebrities Gather to Prove It!

NHS Blood and Transplant launch BME Organ Donation Campaign

A host of celebrities from the British Asian, African and Caribbean communities joined forces yesterday to launch a campaign designed to raise awareness and encourage members of South Asian and Black communities to join the NHS Organ Donor Register.

Pop superstar Jay Sean, TV presenters Sonia Deol and Ama K. Abebrese and singer Jaya came together at London’s Hammersmith Hospital (part of Imperial College Healthcare NHS Trust) to ‘Prove’ they care about the lack of organ donors from BME backgrounds.

Click on title for more information..

Obesity 'almost doubles chances of developing kidney stones'

Being heavily overweight almost doubles the chances of developing kidney stones, a new study shows.

The condition can be incredibly painful and even require surgery,

A study of more than 95,000 people found that around one in 20 obese people had developed the stones, compared to around one in 40 of a normal weight.

click on title link for more info

Kidney Stones

About kidney stones
You normally have two kidneys which clean your blood, and filter out water and waste products to make urine.

Small, solid masses called kidney stones may form when salts or minerals, normally found in urine, become solid crystals inside the kidney. Normally, these crystals are too small to be noticed, and pass harmlessly out of your body. However, they can build up inside your kidney and form much larger stones.

If a stone becomes large enough, it may begin to move out of your kidney and progress through the ureter - a tube that carries urine from the kidney to your bladder. A kidney stone can become stuck at various parts of the ureter causing pain, infection and occasionally kidney damage.

Kidney stones shouldn't be confused with gallstones, which don't affect the kidneys and are caused by raised cholesterol levels.

NHS - Join the Wall of Life

Are your Kidneys Healthy ?Take the NHS Test

Kidney disease check
People can have kidney disease and not be aware of it. There are often no symptoms until the disease is quite advanced. Use this test to see if you're at higher risk of developing kidney disease and should have your kidney function checked.

Click here for the tool

Kidney Care Cookbook WKD 2009

Kidney Care Cookbook WKD 2009: "Lawrence Keogh a celebrity chef appearing regularly on TV cookery programmes in UK, has written a lovely cookbook together with my colleague Diane Green RD for the 2009 World Kidney Celebrations. His cookbook is now online for download IN pdf format: www.worldkidneyday.co.uk/docs/KidneyCareCookbook.pdf

Marianne Vennegoor RD, Renal Dietitian UK."

Start planning next World Kidney Day now! 11 March 2010

The 2010 campaign will focus on Diabetes, the leading cause of Chronic Kidney Disease. World Kidney Day (WKD) is a global health awareness campaign focusing on the importance of our kidneys and reducing the frequency and impact of kidney disease and its associated health problems worldwide.

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Sue Townsend undergoes life-saving kidney transplant

From The Sunday Times December 27, 2009
Richard Brooks, Arts Editor

The author had the operation after her son gave up one of his organs.

Sue Townsend's body initially rejected the kidney donated by her son Sean
As Christmas presents go, it is even beyond the vivid imagination of Adrian Mole.

Sue Townsend, the best-selling author who created the aspiring teenage nerd, has received a life-saving kidney transplant thanks to her son, Sean,
who donated the organ.
(Brian Moody)

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Woman receives ‘incompatible’ kidney with ground-breaking operation

From The Times February 5, 2010

A British woman has undergone a life-saving kidney transplant after having her blood plasma frozen and filtered to ensure that the organ was not rejected.

Maxine Bath, 41, is the first person in the world to have the groundbreaking operation, which allowed her to receive an “incompatible” donor kidney from her sister despite having dangerously low blood pressure.

Click title link for more information and Video.

Chinest herbalist admits selling pills to a woman who develops kidney failure

From Times Online February 17, 2010

A Chinese herbalist today admitted selling dangerous pills which destroyed the health of a civil servant, amid calls to regulate the trade.

Ying "Susan" Wu, of Holland-on-Sea in Essex, pleaded guilty to selling a banned substance to a woman who went on to develop kidney failure and cancer.

Click on title link for more information

Ying Wu Central News

Relief for Haiti's ESRD Patients

As this issue goes to press, thousands of rescue personnel from the United States and other countries throughout the world are engaged in relief efforts in earthquake-ravaged Haiti, where the death toll exceeded 100,000.

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From the February 2010 Issue of Renal And Urology News

Older patients could be receiving kidneys from older donors

Released: 2/15/2010 8:30 AM EST
Source: Johns Hopkins Medicine


Newswise — One-third of people over the age of 65 wait longer than necessary for lifesaving, new kidneys because their doctors fail to put them in a queue for organs unsuitable to transplant in younger patients but well-suited to seniors, research from Johns Hopkins suggests.

Results of a study reported online in the American Journal of Transplantation show that older patients could be receiving kidneys from older donors (called extended-criteria donors, or ECDs), but instead are unnecessarily waiting longer for kidneys from younger donors

Click on title for more information..

Kidney Transplant, Sleep Disorder May Add Up to Trouble

THURSDAY, Nov. 19 (HealthDay News) -- Kidney transplant patients with sleep apnea are at increased risk for high blood pressure, heart disease and stroke, Hungarian researchers say.

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Copyright © 2009 ScoutNews, LLC. All rights reserved.

SOURCE: American Society of Nephrology, news release, Nov. 19, 2009

N.J. 1-year-old girl becomes youngest recipient in kidney donation chain

HACKENSACK -- The large white box had flown more than 2,500 miles on the red-eye from San Francisco wedged into the baggage compartment of a Boeing 737. When it finally landed in Newark at 6:43 this morning, the delivery was already 20 minutes behind schedule.

Inside the Continental Airlines office, Ruben Lambert, nervously checked his Blackberry. Finally, a little after 7 a.m., a truck that had been dispatched to the tarmac, pulled up to the office with the priority package. Juggling two boxes, the delivery man jumped out, letting the top one tumble to the ground.

"Oh my God, that’s not the kidney is it?" Lambert asked, a look of horror crossing his face.

It wasn’t, and within minutes a much-relieved Lambert, an organ procurement specialist from the NJ Sharing Network, was speeding the kidney to Hackensack University Medical Center

Click on link for full story

'Artificial Pancreas' a Step Nearer for Children With Type 1 Diabetes

ScienceDaily (Feb. 5, 2010) — Scientists in Cambridge have made a significant step towards developing a so-called "artificial pancreas" system for managing type 1 diabetes in children. The team has developed and successfully tested a new algorithm, providing a stepping stone to home testing for the artificial pancreas

NKR update - Kidneys transplants that last a lifetime (Terasaki & Cai)‏

Received this email from the National Kidney Registry:

The attached research is a MUST read for transplant professionals. It concludes that ample evidence points to antibodies as the main cause of chronic rejection and suggests frequent monitoring (e.g. every 4 months) for timely detection of de novo antibody formation. If detected early, antibodies will likely be of a lower strength and more readily removed than if detected later.

This proof of a causal link between antibodies and chronic rejection appears to be a major breakthrough in transplantation which could extend the functioning life of a transplanted kidney and eliminate the need for subsequent transplants. If you have any additional thoughts on this topic, please email them to me.

Garet Hil

Founder & President

National Kidney Registry

Download the the article (PDF) here

Kidneys for all

This article highlights the work of Garet Hil and the National Kidney Registry.

Click here for the article

Click here for their US website

Revolutionary operation could 'cure' high blood pressure

By Rebecca Smith, Medical Editor
Published: 8:00AM GMT 26 Dec 2009

from Telegraph.co.uk

A revolutionary new operation which could effectively cure high blood pressure has been developed by scientists, offering hope to hundreds of thousands of sufferers.

In what is being hailed as the most exciting development in the field for 50 years, doctors can treat the condition with a simple procedure in under an hour.

It could allow some sufferers to come off medication completely and offer hope for those for whom existing treatments have no effect.

Man Bikes 4639 Miles despite Dialysis

Published on August 06, 2009

by OfficialWire NewsDesk

(EUNewsNet.com and OfficialWire)

WASHINGTON, D.C.



A 37-year-old man who spent most of his life on dialysis says he bicycled 4,639 miles from California to Washington to highlight the medical needs of others

Click on title for more....

Transplanted organs from donor who died of undiagnosed brain disease transmitted amoebic brain infection to recipient.

Dec 29, 2009 (4 days ago)Transplanted organs from donor who died of undiagnosed brain disease transmitted amoebic brain infection to recipient.

from Hypertension, Dialysis and Clinical Nephrology - Kidney Univ. Miss:

Unprecedented case involving possible transmission of an organism from organ donor to recipients has been the focus of an intense medical search involving the University of Mississippi Medical Center, the Centers for Disease Control and Prevention and the Mississippi State Department of Health. The effort launched recently following the illnesses of two transplant recipients who received organs from the same donor. Both of those patients are now critically ill.

Blog round up

An overview of bloggers with CKD and other renal conditions.

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Follow a kidney patient on a cruise.